Resources for carers

General Resources for Carers

Your Guide to Care and Support

This guide is for people who have care and support needs, their carers and people who are planning for their future care needs.

Information for carers

Some useful UK resources

Advice and resources for carers

It is essential for carers to find time for themselves and pay attention to their health and welfare. Caring for someone who is dying can be exhausting and highly emotional, but also very rewarding. So pay attention to your needs and don’t be afraid to ask for help. A list of UK resources.

Caring for someone with a terminal illness

In this section you can find out about caring for someone with a terminal illness by seeing and hearing people share their personal stories on film. Our researchers travelled all around the UK to talk to 40 people in their own homes. Find out what people said about issues such as becoming a carer, impact on work and lifestyle and planning for death. We hope you find the information helpful and reassuring.

Dementia Guide

A comprehensive guide to caring for someone with dementia

Dementia and end of life planning

Everyone who has been diagnosed with dementia should have a care plan drawn up with healthcare professionals. End of life care should be a key part of this dementia care plan. A guide for those in the UK

Last Stand

A touching account of how a medical professor reassesses Quality of Life in a patient on life support 

Care Together a website which helps family and friends to schedule visits and tasks in caring for a loved one.

Acts of Love: Caring for a Dying Loved One 

Advice relating to some practical aspects of caring for a dying person e.g. preventing pressure sores, repositioning someone in bed, decreased appetite, terminal restlessness.

The Conversations for Life Programme (UK based) offers tools and inspiration for families, professionals and communities to start talking about end of life care now.

Symptoms during the final months, days and hours of life for someone dying with cancer


Resources for near and at the time of death

Dying Matters – Raising awareness of dying, death and bereavement

The information section of this website is primarily for people approaching the end of their life, and their carers, relatives and friends. It will also be of interest to anyone thinking about what they want for their own end of life.

Find Me Help

Find Me Help is the UK’s most comprehensive directory of services for people in the last years of life, their families, carers and friends.

At the bedside

Some suggestions for friends and family sitting at the bedside of a dying person – particularly if they are in hospital or in a hospice.

Practicalities to think about when someone is dying

Suggestions for relatives and carers of people who are dying in a hospice, nursing home or hospital.


Family dynamics when someone is dying

A death in the family, especially when it’s the last parent, can throw up a lot of unresolved and painful issues.


Being with someone when they die

Some helpful suggestions of how to be with someone right at the end of their life; physical signs that death is near; the moment of death; death-related phenomena; immediately afterwards.


The spiritual aspects of death

End of life phenomena; Choosing the moment to go


Talking about death and dying

Practical guidance, information and resources on: how to say goodbye; the importance of good listening skills; and what the dying may experience as death approaches. Also guidance on talking to children and young adults, and practical guidance on how to break bad news. Excellent list of related resources here.


Marie Curie – Care and support through terminal illness

Information and support on Living with a terminal illness, Being there for someone and Information for bereaved family and friends. Also provides expert nursing care at home.

Resources for end of life care

UK resources compiled by


List of UK practitioners in the field of death and dying

Holistic and spiritual companions to anyone at the end of life

Training to be a Soul Advocate in the Midlands, UK

Living Well Dying Well

Doulas are specially trained companions who fill the gap between family and professional care. Their support allows people to feel more able to cope with death, dying and loss, whether at home, in a nursing home or hospital. Find a UK doula here.

US organisation providing educational materials about end-of-life care, palliative medicine, and hospice care


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